Operationalizing Data Justice in Health Informatics

Thinyane, Mamello, "Operationalizing Data Justice in Health Informatics" 2019 ITU Kaleidoscope: ICT for Health: Networks, Standards and Innovation, Atlanta, GA, USA, 2019/12/04-06.

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Conference Publication

  • Sub-type Conference paper
    Author Thinyane, Mamello
    Title Operationalizing Data Justice in Health Informatics
    Publication Date 2019
    Place of Publication Atlanta, GA, USA
    Publisher Institute of Electrical and Electronics Engineers (IEEE)
    Pages 8
    Title of Event 2019 ITU Kaleidoscope: ICT for Health: Networks, Standards and Innovation
    Date of Event 2019/12/04-06
    Place of Event Atlanta, GA, USA
    Language eng
    Abstract There is a growing awareness of the need and increasing demands for technology to embed, be sensitive to, be informed by, and to be a conduit of societal values and ethical principles. Besides the normative frameworks, such as the Human Rights principles, being used to inform technology developments, numerous stakeholders are also developing ethical guidelines and principles to inform their technology solutions across various domains, particularly around the use of frontier technologies such as artificial intelligence, machine learning, Internet of things, robotics and big data. Digital health is one of the domains where the convergence of technology and health stands to have a significant impact on advancing sustainable development imperatives, specifically around health and wellbeing (i.e. SDG3). As far as digital health is concerned, what values and ethical principles should inform solutions in this domain, and more significantly, how should these be translated and embedded into specific technology solutions? This paper explores the notion of data justice in the context of health informatics and outlines the key considerations for data collection, processing, use, sharing and exchange towards health outcomes and impact. Further, the paper explores the operationalization of Mortier et al.`s Human-Data Interaction principles of legibility, agency and negotiability through a health informatics system architecture.
    Keyword Digital health
    Data justice
    Health Informatics
    Copyright Holder Institute of Electrical and Electronics Engineers (IEEE)
    Copyright Year 2019
    Copyright type All rights reserved
    ISBN 9789261284015
    DOI 10.23919/ITUK48006.2019.8996149
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    Created: Fri, 24 Apr 2020, 16:21:23 JST by Tarinee Youkhaw on behalf of UNU CS