Health Systems Implications of Rare Genetic Conditions in Low-and Middle-Income Countries: A Case Study Approach

Allotey, Pascale, Allotey-Reidpath, Caitlin D. and Reidpath, Daniel D. (2018). Health Systems Implications of Rare Genetic Conditions in Low-and Middle-Income Countries: A Case Study Approach. Critical Public Health. Taylor & Francis Group.

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    Author Allotey, Pascale
    Allotey-Reidpath, Caitlin D.
    Reidpath, Daniel D.
    Title Health Systems Implications of Rare Genetic Conditions in Low-and Middle-Income Countries: A Case Study Approach
    Series Title Critical Public Health
    Volume/Issue No. 28
    Publication Date 2018-07-29
    Place of Publication Online
    Publisher Taylor & Francis Group
    Pages n/a
    Language eng
    Abstract A resilient and responsive health system providing universal health coverage is one that is able to cope with both the commonplace conditions faced by the majority as well as rare conditions, particularly when experienced by more marginalised groups. This is critical to ensure that under the sustainable Development Goals agenda, no one is left behind. Low- and middle-income economies are in the process of refining their health systems to respond to the epidemiological and demographic transition. However, with economic development comes the requirement for an ethical transition; the need to justify, with some transparency, the allocation of resources for the less common, but often more expensive conditions. Drawing on a case study of a rare genetic condition, this paper highlights the various pathways in the system that support or hinder access to care, to identify the policy directions for rare diseases in resource constrained settings.
    Keyword Rare diseases
    Universal health coverage
    Catastrophic spending
    Copyright Holder Informa UK Limited
    Copyright Year 2018
    Copyright type All rights reserved
    DOI 10.1080/09581596.2017.1344772
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    Created: Mon, 28 Jan 2019, 11:02:34 JST by Nur Madihah Mat Latip on behalf of UNU IIGH