Work Change in Multiple Sclerosis as Motivated by the Pursuit of Illness-Work-Life Balance: A Qualitative Study

Vijayasingham, Lavanya, Jogulu, Uma and Allotey, Pascale, (2017). Work Change in Multiple Sclerosis as Motivated by the Pursuit of Illness-Work-Life Balance: A Qualitative Study. Multiple Sclerosis International, 2017 1-8

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  • Sub-type Journal article
    Author Vijayasingham, Lavanya
    Jogulu, Uma
    Allotey, Pascale
    Title Work Change in Multiple Sclerosis as Motivated by the Pursuit of Illness-Work-Life Balance: A Qualitative Study
    Appearing in Multiple Sclerosis International
    Volume 2017
    Publication Date 2017-11-16
    Place of Publication London
    Publisher Hindawi
    Start page 1
    End page 8
    Language eng
    Abstract Individuals with multiple sclerosis have a tendency to make early decisions for work change, even in reversible, episodic, or mild disease stages. To better understand how a multiple sclerosis (MS) diagnosis influences perceptions of work and motivations for work changes, we conducted a hermeneutic henomenology study to explore the work lives of ten individuals with MS in Malaysia.The interpretive analysis and cumulative narratives depict an overarching change in their concept of ideal work and life aspirations and how participants make preemptive work changes to manage illness-work-life futures in subjectively meaningful ways. Discussions on their integrated pursuit of finding dynamic and subjective illness-work-life balance include reconciling the problem of hardwork and stress on disease activity and progress,making positive lifestyle changes as health management behaviour, and the motivational influence of their own life and family roles: the consideration of their spouses, parents, and children. At an action level, work change was seen as moral and necessary for the management of illness futures. Our findings contribute insights on how individual perceptions and holistic life management decisions contribute to on-going and disrupted work trajectories, which can inform practice and policy on early interventions to support continued employment.
    Copyright Holder The Authors
    Copyright Year 2017
    Copyright type Creative commons
    DOI 10.1155/2017/8010912
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    Created: Sun, 14 Jan 2018, 14:34:01 JST by Cheah, Swee Neo on behalf of UNU IIGH